The organization of M4DW has signed an agreement with DEBRA Spain. Walkers can donate money to this charity when they sign up for M4DW. DEBRA will also be present during the event itself so the public can get to know more about this rare disease and help them helping patients and their family.
The Butterfly Children Charity (DEBRA Spain) is a National Charity working on behalf of people in Spain with the genetic skin condition Epidermolysis Bullosa (EB). It is given the name Butterfly Skin because the people who suffer from the condition have skin as fragile as a butterfly’s wing. It causes severe blistering and open wounds to the skin, eyes and internally within the digestive system. At present there is no cure only daily bandaging treatment to prevent and protect the skin. The Charity has a medical team comprised of 3 nurses, 2 social workers and 2 psychologists. Together they provide nursing and psycho-social care to all those affected and their families. Funds raised allow the medical team and the Butterfly Children Charity to carry out their 4 main projects; visiting new born babies anywhere in Spain, home visits to the families, holding an annual National Meeting and attending a specialist clinic once a month in La Paz Hospital, Madrid. The main aim is to improve the lives of the people suffering from Butterfly Skin.
If you would like to know more about the charity please see www.butterflychildrencharity.com or if you would like to support the charity please visit one of the local charity shops in Marbella, San Pedro and Malaga http://tiendas.pieldemariposa.es/tiendas-solidarias/